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Thank you to everyone that prayed and sent us messages of support for Eloise’s surgery today.We are exceptionally grateful for all the support and love. We really needed it today and are so incredibly appreciative. Eloise underwent over 10 hours of intense surgery today and we have just met with the Neurosurgeon to go throughContinue reading “Update on how surgery went”

[Side Note: This Blog contains information regarding some of the risks involved in Eloise’s surgery. We realise that some people may choose not to read some of the below].   Eloise is due to have surgery at Alder Hey hospital in Liverpool this Tuesday (16th).  It will be a very long operation (all day –Continue reading “Pray Pray Pray: Life changing surgery to remove Eloise’s tumour on Tuesday 16th March”

This week has been very full – it’s been very busy in the Royal Marsden. Eloise has had (amongst the usual medications, antibiotics and observations) an MRI (Tues), blood transfusions (Sat, Sun, Tues, Wed) , GFR Kidney Test (Thur) and has been discussed at various MDT meetings. To end the week, Eloise got discharged lateContinue reading “Liverpool, here we come….”

The two EMRT experts, who we emailed very late on Friday night, both got back to us over the weekend. They both provided detailed emails with some of the critical areas to consider, showed some of the scans to their local teams for further analysis and advice and kindly connected us with a Neurosurgeon inContinue reading “Prayers for MRI, favour and wisdom”

This week has been spent having blood transfusions, platelet transfusions, antibiotics, learning how to feed and administer medication via NG tubes (Pete and Mel learning!), and changing a lot of clothes and nappies! Eloise continues to do brilliantly with this first cycle of chemo.  She’s running around the ward (always attached to stickman – orContinue reading “Smashing this first chemo and finding ETMR experts”

We’d value prayers for Eloise as she continues through her chemo cycle. Eloise’s blood counts have come right down, as expected, as part of her chemo regime. She now has a mild temperature and is automatically put on 2 courses of antibiotics via IV as she has zero capacity (literally zero) to fight any infection.Continue reading “Update: Wednesday 3rd March”

Eloise has pretty much finished her first set of high dose chemotherapy (she’s received all 5 drugs this week, and will just repeat one of them a couple more times over various days). The full cycle is 21-28 days, but some are ‘rest days’ where other drugs to counteract the chemo are given. She hasContinue reading “One week down…”

Thank you for all the messages of support, love and follow up – including those checking in to see how Anna got on going back to school. We thought we’d share a quick update to let you know … Eloise has started her high-dose chemotherapy protocol. It’s given via her Hickman line, round the clock,Continue reading “Let’s shrink this tumour!”

After a full week of MRI scans, appointments, tests and the operation for the Hickman line and lumber puncture, we are now gearing up for Eloise to start chemotherapy tomorrow. The Hickman line and lumber puncture were done on Thursday – thank you to those of you who prayed.  The operation was done in theContinue reading “Chemotherapy starts tomorrow”

It’s been a bit of a full few days.  On Sunday Eloise was dedicated – we are so grateful to those of you who joined online to celebrate and publically dedicate Eloise.  It really was a blessing to be able to do this before Eloise starts on her next phase of treatment.  A massive thankContinue reading “Update Wednesday 17th”