After an eventful week, Eloise has now been discharged from St George’s PICU and has been transferred back to the Royal Marsden for further recovery from her high dose chemotherapy.
Thank you to everyone for your prayers, love and messages. We are genuinely humbled and immensely grateful for all the love and support, including all the wonderful staff at both hospitals.
Following the high dose chemotherapy and her stem cell transplant on Thursday (the last blog update) Eloise has had a bumpy few days.
The stem cell transplant went very smoothly and Eloise initially was doing well. However, she then started to be consistently sick, which prevented her from receiving any food via her NG tube.
After quite a few discussions it was decided that Eloise should have an NJ tube (tube from her nose to her intestine) fitted before being discharged to the Marsden.
NJ tubes are not straightforward to fit and involve a little bit of guess work and then a (portable) x-ray to see if they are fitted properly. Unfortunately for Eloise this process took a few days and 6 attempts to get right, which slightly delayed Eloise’s return to the Marsden.
Eloise was transferred back to the Marsden this afternoon and she immediately picked up when she returned back to ‘her’ room. Unexpectedly and encouragingly she managed to eat some food normally this afternoon, which was wonderful to see.
Eloise will continue to stay at the Marsden as we wait for her blood counts to first go down further, and then recover, before we go to Manchester for the proton beam therapy. We are told to expect her to be particularly poorly for the next 1-2 weeks as the side effects of the high dose chemotherapy kick in.
How do we feel?
There is so much we could say here. It’s been one of the most intense weeks of the journey so far. So many very scary/worrying moments that we’ve had to just ‘ride’. We are very grateful that we have a God that is right there with us in all of these moments and is continuously with Eloise.
We feel pretty knackered (all three of us) but very grateful. We are very grateful for all the amazing staff across the NHS working so hard to investigate possible causes of the seizure (it was likely it was the chemo), administer her stem cell collection in a different hospital than planned and grateful that the seizure doesn’t appear to have any lasting impact on Eloise.
It has been a fairly intense week and we are very glad to be back at the Marsden and have put all our efforts into making sure Eloise recovers well and as soon as she can.
Special thanks to both our Mum’s who stepped in again to look after Anna and allowed both of us to be with Eloise in intensive care.
For those that pray:
- Prayers of thanks that Eloise is no longer requiring acute care and has come out the other side of a severe seizure with no obvious negative side effects.
- Prayers that Eloise would stop being sick, retain her feed and start to regain her strength and weight (Eloise didn’t eat/have feed for a week until last night).
- Prayers for energy for us.
- Prayers for some quality time with Anna this week, who has also had an unsettling week.