Eloise is still in intensive care but is much more responsive. She’s awake and talking, and watching some of her favourite programmes. She is very weak, and hasn’t yet had a feed, but we feel she has turned a corner. She was taken off the additional oxygen support and is stable.
The stem cell transplant went well. The team from the Marsden came and Eloise’s stem cells were transported in a cubicle (see below) into intensive care. The nurses then took out the cells, warmed them up in a specific water machine to un-freeze them and then gave them to Eloise via her Hickman line. All of this was meticulously timed and managed. She’s had no side effects thus far, which is fantastic.
Eloise has stopped being sick (including blood) since the middle of the night (after upping her anti-sickness meds further), and is due to re-start a very small feed via her NG line shortly. We are hoping she tolerates this and it can be increased and she can recover her strength, and that in due course she can also eat normally too!
We are hoping to get out of intensive care and return to the Marsden hospital over the weekend. Doctors feel relatively confident that the severe seizure was a response to the thiotepa chemo drug, so we really pray this is the case. We will be talking to neurologists in due course, so we know what to do if this were to ever happen again (we really pray it doesn’t).
How do we feel?
We are so proud of our girl. It’s been a brutal week, and we know Eloise is also likely to feel very poorly from the chemo over the next 1-2 weeks, but we are so proud that she has been soldiering on. It’s lovely being able to talk to her again. She’s such a sweetie!
We are incredibly grateful to all the staff in intensive care here at St George’s and the teams at Royal Marsden. They have been wonderful and Eloise has had so many things checked and re-checked (MRIs, EEGs, ECGs, bloods, cultures etc etc). We couldn’t ask for anything more!
We are very grateful that Eloise has not had any obvious seizure activity over the past few days. So incredibly relieved and grateful.
We also feel exhausted, miss Anna and miss normality. But we are grateful that Eloise has got through this week and we keep our minds focused on moving forward…
For those that pray:
- Thanks that Eloise has come through a scary ordeal, is now doing much better than she was and can now focus on recovery (from the seizure and her high dose chemo).
- Pray that Eloise continues to get stronger and tolerates her feeds.
- Pray for Anna, as this has been a particularly hard week for her too.
- Pray for Eloise as she suffers the effects of the high-dose chemotherapy over the next 1-2 weeks. Pray these short term effects are as minimal as possible (e.g. limited mucositis, sickness, skin damage) and that she can get to proton therapy very very quickly!
- Pray that the high-dose chemo is doing what it needs to do, and kills any remaining cancer cells.