Category Archives: Uncategorized

It’s been a full few weeks but overall Eloise has been doing excellently. She’s really made some progress and has turned the corner recently… she has much much, more energy than she’s had for the past 2 years and her sassy character is coming out. This also means we are dealing with a few moreContinue reading “Prayers for Friday and beyond”

The December in-and-out of hospital continued, with Eloise getting both a UTI and viral infection (at the same time) during the week running up to Christmas. But after another night in hospital, some IV antibiotics and some great care, we were home and had a lovely Christmas with Mel’s family (at Mel’s Mum’s house). WeContinue reading “Happy 2023!”

Eloise recovered symptomatically from Flu A last week and by the weekend was doing well again. Thank you to those of you who prayed. Eloise actually had the non-live flu vaccine (a jab) a couple of days before she was admitted to hospital with flu, so the jab might have just helped her get overContinue reading “Little update”

We’ve been silent for the past few weeks but not because it’s been quiet – it’s been an extreme winter infection hospital admission yo-yo. Eloise has had 4 admissions into our local hospital in the past 6 weeks or so with infections. 3 weeks ago Eloise had a few days/nights in hospital following another feverContinue reading “Infection yo-yo”

The scan showed no evidence of any tumour regrowth! Hallelujah and … phew! It’s been a pretty hectic and stressful past couple of weeks and these were the lines we wanted to hear. We are extremely grateful to the NHS for their combined and prompt response to Eloise’s seizures restarting, resulting in rapid appointments with:Continue reading “No Evidence of Disease on MRI scan! (…but not all clear)”

It’s been a busy and hugely challenging week, where Eloise has had seizures almost everyday. The reoccurrence of Eloise’s seizures have accelerated a lot of conversations, hospital admissions and tests. Yesterday we saw Eloise’s Epilepsy consultant, who graciously gave us a lot of her time for us to pepper her with a lot of ourContinue reading “MRI brought forward – please pray and ask others to pray too”

Thank you for those that have been praying. It was a challenging day yesterday but Eloise is home and the CT scan showed no hydrocephalus. We had a nerve racking few hours as were told the CT scan showed ‘pathological changes’ that needed comparing with previous scans, so these were sent to St George’s. AContinue reading “Eloise at home”

It’s been a while since we last sent out an update. Since then Eloise has settled into nursery really well, with the excellent care of all the Rydes Hill school family, her teachers and from her 1:1 support. Eloise has started to develop some genuine friendships and is especially enjoying ballet on a Wednesday morning.Continue reading “Please pray – seizures have returned”

Today Eloise had her first (well 1 hour session) at nursery school!  A big milestone for any child, but for her, this feels enormous.  To have survived and to have been able to attend a nursery is incredible. We are forever indebted to the fantastic Rydes Hill Preparatory School and Nursery for everything they haveContinue reading “First day at nursery and an update on next steps”

Yesterday was a momentous day. We found out that Eloise’s latest MRI scan was all clear and Eloise got to ring the bell at the Royal Marsden to signal the end of all her active cancer treatment. Quite simply, this is a stunning statement and wonderful news. We are so grateful and indebted to soContinue reading “Celebrating the end of treatment and a positive MRI result”