Category Archives: Uncategorized

Today Eloise had her first (well 1 hour session) at nursery school!  A big milestone for any child, but for her, this feels enormous.  To have survived and to have been able to attend a nursery is incredible. We are forever indebted to the fantastic Rydes Hill Preparatory School and Nursery for everything they haveContinue reading “First day at nursery and an update on next steps”

Yesterday was a momentous day. We found out that Eloise’s latest MRI scan was all clear and Eloise got to ring the bell at the Royal Marsden to signal the end of all her active cancer treatment. Quite simply, this is a stunning statement and wonderful news. We are so grateful and indebted to soContinue reading “Celebrating the end of treatment and a positive MRI result”

So Eloise had her last dose of isotretinoin chemotherapy on Friday 5th August. Half an hour later the community nurse took her NG tube out, as Eloise takes all the other medications orally and also is taking a supplement orally (alongside food – although this is still relatively limited in variety). Ending the final roundContinue reading “Grateful for a holiday and no tube!”

On Monday we came down to Weymouth after being generously provided free accommodation at a stunning holiday park by a generous charity, Teddy 20. (Thank you so much!) The holiday park had some incredible facilities, including a soft play and an amazing swimming pool, which both Anna and Eloise enjoyed tremendously. We also met up withContinue reading “Covid disruptions”

This blog was set up to keep people updated on how Eloise and we are doing, following Eloise’s cancer diagnosis and to ask for prayers as we journeyed along the treatment path. Writing the blog, we have often wrestled with how to best walk the tightrope of disclosing all the facts, details and our concernsContinue reading “Prayers for full healing”

So yesterday Eloise had her 12th and final intrathecal chemotherapy via GA. She was fantastic, as usual, and enjoyed her time at the Royal Marsden. We are so grateful that Eloise has gotten better this week and it went ahead yesterday. She’s now got 4 weeks on her oral chemotherapy before she starts the weaningContinue reading “12th and final round!”

We’ve failed to write an update for a while – it’s been busy! Thank you for the continued prayers and messages, we are very grateful. Eloise has been doing (relatively) really well. She tolerated the intrathecal chemo well. She’s had a busy and exciting few weeks, for which we are really grateful. The last fewContinue reading “Full days”

A day we thought might not happen has arrived (…. or will do tomorrow – we celebrated early this year). Eloise turns 3! Sometimes words (or tears) can’t adequately describe how we feel. But here goes: Dear Eloise, You are a much loved and beautiful daughter. It is very difficult to express in words howContinue reading “Eloise turns 3!”

Today, Eloise had her 10th intrathecal chemotherapy.  Only 2 more intrathecal chemo’s to go – 3 more months of chemo drugs…. The plan is for her to finish treatment at the beginning of August.  We can see the end of treatment in sight. Eloise tolerated the chemo really well today and thoroughly enjoyed her dayContinue reading “Chemo and MRI debrief”

Late yesterday we got phoned by the Royal Marsden to inform us that although they don’t have the full radiologist report they still discussed Eloise at their weekly Neuro-Oncology Team Meeting. Mr Singh (Eloise’s neurosurgeon at St George’s) said he had looked at the scans and they looked “all clear”. We will still wait forContinue reading “Early indications show that the scan is clear!”