Last night after the MRI, which came back with no change (which is good news) Eloise was taken off the sedation and ventilator. All the other tests came back clear, indicating that the seizure was either caused be 1) her now starting to have these types of seizure or 2) a response to the high dose thiotepa drug. Unfortunately only time will tell…
Eloise is still in PICU and is unfortunately not responding as much as the Doctors would hope. She has spoken a few words and has moved her limbs when asked (if she’s awake) but is very sleepy, not opening her eyes much and is requiring some support with her oxygen/CO2 levels. She also has some jerky movements.
She did not have her final dose of thiotepa and will therefore now have her stem cell transplant tomorrow. Eloise will also have an EEG today to look at her brain activity after the seizure.
Please, please pray for her. It’s distressing to see her not responding. Please pray she wakes up properly, is able to talk, stops jerky movements and returns to being the Eloise we know and love! She needs all the strength she can muster with the stem cell transplant and all her counts dropping from the chemo. Come on, keep fighting Eloise!
Please pray that this severe seizure (with lack of breathing) was an absolute one off and a response to the thiotepa. As you can imagine, we can’t even think about this ever happening again…. Please pray for the EEG – that it shows nothing concerning.
Thank you all for your love and prayers for our darling warrior. She has been through so much. We need her to keep living up to the meaning of her name Eloise Zoe!