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Eloise has had 6 sessions of her proton beam therapy (PBT) and so far it’s been going well. As a friend commented – it’s 20% and we would have passed the 5 mile mark in a marathon. We are so grateful it’s been going well. Eloise has been getting hungry (and angry) in the morningContinue reading “One week down and so far so good.”

30 general anaesthetics, 30 proton beam therapy sessions, 30 mornings of being nil by mouth, many CT scans and X-rays (starting off daily, then every few days) and 3 birthdays…it’s set to be a full 6 weeks in Manchester! Today Eloise had her first Proton beam therapy treatment.  It marked a big day in obliteratingContinue reading “Proton Go!”

We unexpectedly arrived back from Manchester late last night, concluding a successful trip to the Christie Centre for planning the Proton Beam Therapy. The trip wasn’t without entirely without event though… Following the last update on Monday night, Eloise’s scans (CT and MRI) and face mould fitting went well on Tuesday. Thank you for allContinue reading “Proton planning completed and scheduled to start next week!”

We arrived in Manchester yesterday and are really grateful to be staying in a lovely city centre aparthotel (StayCity) that is provided for families of children receiving proton beam therapy treatment.  It feels a big upgrade to a hospital pull out bed.  There is a shuttle bus that takes us from the Aparthotel to theContinue reading “Proton Planning Update”

The last few days Eloise has been at home and has had such a fantastic time!  It’s been a joy to see Eloise love ‘normal things’ such as going to feed the horses up the road, see the ducks, play in the garden and just enjoy being at home.  She is doing utterly amazingly –Continue reading “Proton planning starts on Monday”

Today Eloise went back into the Royal Marsden for some blood tests, a few other checks and to be discharged.  Disappointingly her neutrophil counts had dropped, so she needed another GCSF injection – but after a few hours of discussions, she was allowed home as ‘is otherwise doing so well’ (I was nervous when anotherContinue reading “Keep praying for Eloise to get to Manchester for Proton beam therapy”

Eloise has had a really good week – her energy has slowly returned, as has (some of) her appetite and importantly her blood counts have improved. Also, much of Eloise’s zeal and character has returned!  She’s been walking around (even trying to run), playing with other children on the ward and even had a danceContinue reading “Home for the weekend!”

Over the last few days Eloise has got much better! Her temperature and infection have gone, and she’s been getting stronger. She’s stopped being sick and is having a combination of IV feeds, NG feeds and eating some food. She’s walking around (with stickman) and enjoying the playroom and garden. It’s lovely to see herContinue reading “Update 3rd May: Counts on the Up!”

A few people have asked about our faith in the current circumstance, so we thought we would write a second blog today on our thoughts on where we see God in all of this. It might seem very difficult to imagine us seeing God in the midst of such immense pain – and there reallyContinue reading “So where is God in this?”

The last couple of days have been like a yo-yo. Yesterday morning (Tuesday) Eloise seemed to suddenly jump back – she had taken her first steps, was walking round and wanting to play for a couple of hours. She had managed to nibble at a few things and her sickness had stopped. Eloise’s counts hadContinue reading “Update from Marsden 28th April”