We unexpectedly arrived back from Manchester late last night, concluding a successful trip to the Christie Centre for planning the Proton Beam Therapy. The trip wasn’t without entirely without event though…
Following the last update on Monday night, Eloise’s scans (CT and MRI) and face mould fitting went well on Tuesday. Thank you for all those that prayed. Eloise went under GA at about 1pm and then had her various scans etc. She then went to the Manchester Children’s Hospital for her shunt to be adjusted (the MRI adjusts the shunt setting each time). Unfortunately readjusting the shunt back wasn’t very easy to do and after several failed attempts, followed by several x-rays to see if the shunt needed adjusting (which it eventually showed it did!) we returned to the flat without an unadjusted shunt and needed to return the next day. Eloise was a legend…bloods, MRIs, CTs, mould fittings and several x-rays in one day! Well done Eloise! Just for a laugh though – we got back to the flat about 9pm, and 5 minutes after Eloise fell asleep, the fire alarm in the flat went off due to an electrical fault. We did eventually get to bed…
Yesterday (Wednesday) lunchtime we returned to the Children’s hospital and the shunt was adjusted corrected – so all good now! We were then told that The Christie Centre had everything they needed from the scans, so we could go home. Fantastic!
Eloise will start Proton Beam therapy in Manchester on Wednesday (26th) morning. This is earlier than we expected and is great news!
We now have a few days at home, with a few appointments on Monday, before travelling up to Manchester on Tuesday. There are quite a few logistics and practicalities to sort to be away for so long (from prescriptions and feed deliveries to be in the correct place, Covid tests, to sorting diaries/appointments and plans for Anna etc) but we will enjoy a few days at home all together before we embark on this next stage.
That said, Eloise has just pulled her NG tube out again (she did twice at the weekend too!) and so we are heading back into the Royal Surrey for them to re-fit it, so we can give Eloise her feed tonight. Such is the life of a kid with cancer unfortunately (no day is off!).
For those that pray:
- Give thanks that Proton planning went well and that Eloise will start therapy on Wednesday!
- Give thanks that Eloise is doing so well – she really is.
- Pray that the next few days go smoothly and that we can sort all the necessary logistics. Pray for energy to keep going!