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After a low-key few days where Eloise has been quite low energy, last night we made it to Appledore, Devon. We are so grateful to be here. Thank you to Mel’s wonderful aunt and uncle for letting us use their place. It has a wonderful view, so even if we don’t manage to do much,Continue reading “Made it on holiday to Devon!”

Eloise was discharged from hospital yesterday and is happy to be home.  She is very up and down with tiredness (it’s very unpredictable – one day she is tired, the next she has more energy), and today she has mainly just wanted cuddles.  We have Mel’s brother and sister-in-law staying whilst they have some houseContinue reading “Tired but home”

Thank you for those of you who prayed for Eloise yesterday. She had her first intrathecal topotecan chemotherapy yesterday and also started the other agent that she will take twice a day for the year. She will start the final oral chemo drug in a couple of weeks. Unfortunately yesterday afternoon after the intrathecal chemo,Continue reading “Unfortunately staying longer in the Royal Marsden”

Tomorrow morning (Thursday 12th) Eloise starts her first cycle of her new maintenance chemotherapy. She will have her first intrathecal topotecan via lumbar puncture in the morning at the Royal Marsden and will stay in for monitoring until late Friday (all being well). She will then return home to recover and will take daily oralContinue reading “A little prayer for Eloise as she starts a new chemo”

Firstly, apologies for a long post….there is a lot to catch-up on. How is Eloise? Eloise is doing well but has definitely become more tired, lethargic and ‘dozy’ (often meaning she’s walking dozily and tripping).  We’ve been told that this is likely to continue for a few more weeks and that she is roughly atContinue reading “A new phase – a year of chemotherapy to keep the cancer away”

Today we had planned to see some friends for a walk. Unfortunately just as they were about to arrive at our house, Eloise had started to follow Anna up the stairs and fell down a few stairs. She unfortunately immediately went very pale, was ‘out of it’, just wanting to sleep and then vomited. ItContinue reading “Too much drama”

Four life changing words. This afternoon we got a voicemail from the Royal Marsden CNS nurse to inform us that they had reviewed Eloise’s  MRI from Wednesday and … “The scans are fine, there is no evidence of disease that we can see… so just to confirm, there is no evidence of disease and weContinue reading “No evidence of disease!”

The last few days have been a bit up and down.  After a several hour GFR Kidney test in the Marsden on Thursday, we were first told there would be a slight delay (a couple of weeks) in Eloise having her MRI and starting her new phase of chemotherapy – making us feel a littleContinue reading “Critical MRI this Wednesday…. Please pray”

The Royal Marsden Drug’s and Therapeutic committee unanimously approved the proposed maintenance drug combination for Eloise! This is unbelievably good news and an incredible achievement by our wonderful Oncologist and the Head of the paedatric unit (who presented the case at the Committee). To put it into context, it means that Eloise will: Receive aContinue reading “Approval for maintenance chemo in the UK!”

This blog was originally intended as a place for friends and family to be kept updated on Eloise’s progress – particularly as Pete and I have a huge family, circle of friends and church community (we are very lucky!).  Since writing this blog, it has been shared with many, many others – and we knowContinue reading “Why this blog has become more than a blog…. And please pray for Archie’s surgery tomorrow!”