Author Archives: Eloise Zoe Updates

Eloise has thoroughly enjoyed being at home for the last few days. She’s the strongest she’s been since pre-Christmas and it is wonderful to see. We treasure our time with her and Anna. There are no further treatment updates yet. We have the usual community nurse visits tomorrow and a few other appointments over theContinue reading “Thank you for journeying with us so far”

We are forever indebted to the NHS and wonderful staff at The Proton Beam Therapy Centre at The Christie Centre in Manchester. Here are some pictures and video of Eloise’s final day of Proton Therapy and her ringing the bell to mark the end of treatment. Coming down the stairs with Proton staff in tow,Continue reading “Finishing Proton Therapy”

Eloise has been approved for Intrathecal topotecan chemotherapy at the Royal Marsden in the UK (the chemotherapy drug to be directly administered into her brain and spinal fluid via a lumber puncture).  Thank you to those of you that prayed!  We are so grateful for getting over this huge hurdle.  Our oncologist is now puttingContinue reading “One step closer: Intrathecal topotecan approved, now need all the drugs to be approved!”

Just a little post: Would be really grateful for prayers for a meeting today that our oncologist is having about Eloise’s treatment. We understand our oncologist is presenting to the Intrathecal committee, with some evidence from the leading ETMR researcher from Canada, on the need/benefit for Eloise to have intrathecal topotecan as a maintenance chemotherapyContinue reading “Prayers for a meeting today”

If you’ve been following the blog over the past few weeks, you will know we have been working on Eloise’s future maintenance chemotherapy – at the recommendation of the ETMR experts.  Without going into all the ins-and-outs of some very complicated options/scenarios, we would be really grateful if people could pray. At the moment weContinue reading “Plates are spinning – UK (various locations), Spain, Canada and the USA are all on the cards. We need an option to land…..and fast!”

Whilst this blog is to udpate people about Eloise’s health and to provide some things for people to pray about, we felt today we should write a short post to mark Anna (Eloise’s sister) turning 5. The girls continue to adore each other and we are so grateful to Anna for being such a superstarContinue reading “Anna turns 5 today”

Eloise is going from strength to strength.  We are so proud of her!  She has definitely found the proton beam treatment the most tolerable of her treatment so far, as we somewhat expected, but we know that its also the most likely to have long term side effects – so please, please continue to prayContinue reading “Please pray: Wisdom and Open doors needed!”

Eloise is half-way through her proton beam therapy! She is doing so well and continues to enjoy being an outpatient and trips to the park in the afternoon. Most days she’s getting more accepting of being nil by mouth. She enjoyed time with Nanna V last week, and this week her other Nanna! Precious times.Continue reading “Half-way through and BIG prayers needed for next steps!”

Over the last week Eloise has done really well – she’s getting stronger by the day, tolerating the anaesthetic well and enjoying being an outpatient. Eloise thoroughly enjoyed her birthday weekend – all four of us going to Tatton Park on Saturday, opening her presents and to the park with Nanna V on her birthdayContinue reading “Over one third down”

Our wonderful and delightful Eloise turned 2 today. There is so much we could say and we don’t quite know how to summarise it. But here goes – Eloise you are amazing and we are so proud of you. The last year has been harder on you than we could have ever, ever imagined andContinue reading “Eloise turns 2!”