Author Archives: Eloise Zoe Updates

It’s been a real treat to have a week at home with both girls – albeit punctured with appointments and some nights in hospital. The girls have enjoyed Easter activities, playing in the (sunny) garden and just generally getting time with one another. Eloise continues to recover exceptionally well from all her operations and isContinue reading “Stem cells collected and what a treat to have some days out of hospital”

This weekend Eloise really turned a corner – she’s walking and acting much more like a normal 21 month old! She’s smiling a bit more which is lovely too and has really enjoyed being with her big sister Anna and seeing a few family members in the garden.  We are so grateful for the sunshineContinue reading “Easter gratitude before another big week”

Thank you for your prayers for the drive back to Guildford, which we managed on Sunday. Eloise did really well all things considered and we only needed to do short extra stops to reassure her. Anna returned to school yesterday and is so pleased to be back seeing her friends – she has skipped intoContinue reading “Back home, enjoying some sunshine, and more appointments and operations”

Eloise was discharged from Alder Hey yesterday evening. After 12 days, Eloise has left hospital with no tumour and increasingly, no evidence of any long term neurological damage (hopefully) – thank you Liverpool and the wonderful staff at Alder Hey hospital. Mission accomplished for this part of the journey. We can’t thank you enough. WeContinue reading “Discharged from Alder Hey”

Eloise had her shunt surgery yesterday – the operation went smoothly. We are really grateful to all the staff here at Alder Hey for everything they have done to get Eloise through 2 operations and ensure she is looked after. Since then, Eloise has turned a corner. She’s been sitting up for longer periods andContinue reading “Successful shunt, growing stronger and wow – what a miracle”

The last few days have been unhelpfully eventful. Eloise had her external drain removed yesterday and ended the day doing much better. However, today she has unfortunately got a lot more poorly. She was sick several times and as a result had another CT scan. The scan was inconclusive so they tapped the Rickham reservoirContinue reading “Back to surgery for a shunt operation tomorrow (Wednesday)”

Eloise is on the neuro-recovery ward, but has had a harder couple of days and has been a bit more poorly and quite weak. As a result the doctors decided to do a CT scan to check how her brain was settling post-op. The CT scan showed that Eloise continues to have air on theContinue reading “Update Sunday 21st: Rocky recovery”

Eloise is still in HDU but is planned to move to the recovery ward later today. Overall she is doing really well – she’s eaten some food (so shows she can swallow), is talking and her limbs can respond. Her eyes, on first appearance look ok and she can see things near and far away.Continue reading “Update on Eloise – Friday 19th March”

We have just seen Mr Mallucci (Neurosurgeon). They’ve reviewed the galadium MRI scans which we didn’t have when we spoke last night… AND…. there is no evidence of the tumour and they are calling it a COMPLETE RESECTION. They think the area they saw on the previous scans before is blood and the veins. AsContinue reading “Scans show no evidence of the tumour!”

Thank you to everyone that prayed and sent us messages of support for Eloise’s surgery today.We are exceptionally grateful for all the support and love. We really needed it today and are so incredibly appreciative. Eloise underwent over 10 hours of intense surgery today and we have just met with the Neurosurgeon to go throughContinue reading “Update on how surgery went”