People talk about fighting cancer and it being a battle, and goodness me, it is. With grade 4 malignant brain tumours there are no ‘quick wins’ – it’s a long fight…. But today’s news: Eloise (with heaven’s armies) is winning!
This afternoon we spoke with Eloise’s oncologist who said her scans are stable. There is no sign of relapse. There is no sign of cancer! The post-operative changes/scarring are improving and look less cellular. The biggest relief and the biggest miracle! Thank you medical professionals, researchers/scientists, taxpayers, family, friends, those praying and journeying with us and most of all thank you to God!
That said, the fight continues.
The scan also showed a couple of things, which we hope, are both relatively minor:
- Low pressure in her brain – most likely meaning Eloise’s shunt needs adjusting.
- A micro-haemorrhage – possibly caused by proton beam therapy. Apparently nothing needs to be done on this for now.
We have an appointment with Eloise’s neurosurgeon at St George’s on Thursday so will be discussing these with him then.
Also, Eloise’s blood cultures from her admission on Wednesday/yesterday have come back positive, with a possible infection in her Hickman line. So we got called back this morning to give more blood samples and will see if they come back positive again. Hopefully they won’t, and we can avoid a long (approx 10-14 day) hospital admission for IV antibiotics. We will find out within the next 48 hours and go in if needed.
So Eloise continues to be ‘punched’ quite a bit, with the side effects of all the tumour and treatment, but ultimately she is winning and the brain cancer is losing! Pray it stays that way, that the punches are short-lived and tolerable and that there will be limited scars in the years to come.
How do we feel?
Relieved, grateful, in awe of how Eloise continues to be in Complete Remission. The news always comes with a rush of emotion. We are so grateful for our amazing girls.
We feel for other families that have lost their children to ETMRs – it’s just so unfair.
And also still grieved that Eloise continually faces so much. Our ‘minor’ things (micro-haemorrhage, low brain pressure, a possible long hospital stint from tomorrow, managed epilepsy etc etc etc) would, for most families still be quite a big thing. But in our world, they are smaller, compared to the ‘main thing’ of her ‘living/surviving’. And that’s still quite weird. We praise and continue to pray.
For those that pray:
- Thank God that Eloise continues to be in Complete Remission and with No Evidence of Disease. We don’t take this for granted. This really is a miracle (look back at the odds we were first given!)
- Thank God for all the amazing medics, scientists, nursing and caring staff etc that have enabled Eloise to get the best treatment and get this far. How remarkable. We are so grateful knowing that she is one lucky girl – billions upon billions wouldn’t have access to the latest science and treatment. We feel so blessed.
- Pray for the other aspects on Eloise’s scan – that the micro-haemorrhage causes no issues, and that the shunt can be easily adjusted and help address the low pressure in her brain. Pray for Eloise to have limited symptoms of either of these two issues.
- Pray against infection in her Hickman line. On the scale of ‘brain cancer’ this is small – it’s treatable etc. We would just like to avoid another long hospital stint if we can… as would Eloise and Anna!