Eloise has been recovering in the post surgery ward and has been doing well, including eating very well and charming the Drs and nurses.
She has has had a few post op ‘teething’ issues but in general is making steady progress and we hope she will be discharged later today.
We will be back early tomorrow to see a specialist paediatric neuro-ophthamologist (an eye specialist) – to check the pressure in her brain/tumour hasn’t damaged her eye sight.
Thank you to everyone for all your prayers, prayer rotas, messages of encouragement, food, gifts and love. We have, quite frankly, been humbled by the outpouring of love, generosity and prayers for Eloise and us. What is quite extraordinary to us is, due to the pandemic, many of you have never met Eloise (or even us!). We are so exceptionally grateful for you supporting us in this critical time. We truly are. As the blog title suggests we have felt surrounded by love, prayers and God’s presence (during the worst moments before Eloise went into ICU we were singing The Blessing over her – the neurologist turned to us and said “I like this song – it’s one of my favourites). Thank you and we thank God.
Going home and spending time as the four of us will be very precious. However, we also know this is only the start of Eloise’s journey and would greatly value your continued prayers.
For those that pray:
The immediate next steps are:
- Biopsy – Samples of Eloise tumour are being analysed and reviewed as we type. The results will be sent to the Neurosurgeon who will discuss Eloise at the larger MDT meeting. The result of the biopsy are crucial in determining both Eloise’s treatment and ultimately prognosis. Please pray that Eloise’s tumour is low grade and that there are some good (read, as low risk as possible) options available to us
- MDT meeting – a large collective of wonderfully skilled and clever neuro-oncology professionals are going to review Eloise’s case on Friday further to the biopsy results. The Neurosurgeon will then phone us later in the day and present their discussion and proposed/preferred next steps. Please pray that there is a clear and obvious treatment route – one that the MDT are confident and experienced in. We understand surgery, chemo and even proton therapy are all possible options.
- Eloise’s recovery – Please also pray that Eloise recovers well from the current ETV and biopsy surgery and can enjoy spending time and playing with Anna again. Specifically we would like Eloise to not tremble/tremor anymore and to gain control over the seizures (i.e. eliminate them with meds).
How are we feeling?
- We are grateful that Eloise is doing well. Grateful to have got through the weekend and through a pretty frightening period post surgery. Grateful for all the wonderful staff and care at St George’s.
- We feel surrounded by love and prayers – thank you ever so much.
- We feel tired but ok (Mel is looking forward to her own bed!)
- We feel grateful that Anna has been a star, wonderfully mature and has not been too anxious or missed us too much.