So Eloise had her last dose of isotretinoin chemotherapy on Friday 5th August. Half an hour later the community nurse took her NG tube out, as Eloise takes all the other medications orally and also is taking a supplement orally (alongside food – although this is still relatively limited in variety). Ending the final round and removing the tube felt such a big deal – we haven’t seen our girl without an NG tube since she was 19 months… and now she’s 3. Eloise’s neutrophils came back up and we all recovered from Covid. Yay!
The next morning we went on holiday to Dunster, Somerset (Mel’s aunt kindly let us stay in her beautiful cottage – thank you!). And we managed a full 7 days – our first full week holiday since pre-pandemic! It was so precious – Eloise got stronger during the week, the weather was beautiful and the girls just loved the calm and peace of Dunster. Lots of playing in streams, playing in the park, walks round Dunster castle, steam train rides and time on the beach – and even having a family sea kayak. To be honest it was the closest to a ‘normal family’ we have felt in nearly 2 years. And without Eloise having an NG tube we ‘looked’ more normal… we’ve actually got used to people noticing Eloise/Eloise’s tube for so long it was actually weird (and very nice!) to blend in and not stand out so much.
The holiday was a real blessing. It was time to see our girls just be girls – they continue to be best buddies and loved sharing a room (possible as we don’t have an NG feed going at night) and giggling. We are so grateful to God that we have been able to see this.
Eloise’s end of treatment MRI will now be on Friday (19th) and we will get the results the following week. We hope that Eloise will ring the bell the following week when we go into the Royal Marsden to meet her oncologist and discuss the scan. Having spent more of her life on cancer treatment than off it, we feel she deserves to ring that bell!
For those that pray:
- Pray for the MRI scan on Friday! Pray that Eloise is cancer free and the scan shows all good news.
- Give thanks for a wonderful holiday and for some very precious memories.
- Give thanks that Eloise has finished her final round of chemo and has had her NG tube removed. Pray her weight stays up and she can remain tube free.
- Pray for Eloise’s full healing – for her to development, her strength, her eyes, her brain. Pray for any damage caused by the tumour, hydrocephalus, seizures or the cancer treatment (surgery, proton, chemo) to all be fully healed.
- Give thanks that Eloise is here with us and is smiling more each day.
We thought some of you would like to see Eloise tube-free. So here she is… her blonde hair has returned too. We are so grateful to our miracle-working God and to you all for praying.