This week has been very full – it’s been very busy in the Royal Marsden. Eloise has had (amongst the usual medications, antibiotics and observations) an MRI (Tues), blood transfusions (Sat, Sun, Tues, Wed) , GFR Kidney Test (Thur) and has been discussed at various MDT meetings.
To end the week, Eloise got discharged late this afternoon and the four of us are all home together for the first time in three weeks.
This is a very short update as we are pretty exhausted and have a lot to sort for the week ahead, but here are a few key things:
Eloise’s MRI results show that the tumour has continued to grow, but potentially at a reduced rate. In short, the chemo isn’t doing what it needs to do (shrink the tumour).
As a result of the latest MRI result, various MDT teams have concluded that the only route ahead is for Eloise to have surgery to attempt to remove as much of the tumour as possible. To cut a longer story short, due to some truly phenomenal logistical and administrative work by Eloise’s Oncologist and others at the Royal Marsden, Eloise has been offered the chance to have the surgery at Alder Hey Hospital in Liverpool. This is significant for two reasons, the first is that Alder Hey have state of the art facilities, including an MRI machine in the operating theatre, which increases the chances of safely removing the tumour. Secondly, the Neurosurgeon at Alder Hey is a very experienced Surgeon who has a very good track record of removing tumours in this difficult area. (In his words “this is on the edge of the limits of Neurosurgery).
Eloise will therefore be having surgery to remove the tumour, this Tuesday 16th March in Alder Hey Children’s Hospital in Liverpool. We will all be travelling up to Liverpool on Monday and Eloise will be admitted on Monday to prepare for surgery on Tuesday. The surgery will be all day, and, as can probably imagine – is very, very risky. But we have no other options and are exceptionally grateful that Eloise is being given this opportunity.
Home for the weekend:
Eloise’s blood counts have come up, which means she has been allowed home! We brought her home this evening – and Anna and Eloise were very pleased to see each other. We therefore have the weekend together, with the amazing support of our ever-helpful parents. Eloise still needs feeding via her NG tube and will have the community nurses visit, but the Marsden were keen for us to be able to get home and the girls have some time together, before Eloise goes for surgery.
We will write more in due course, but for now we just wanted to update you on this important stage.
- Sorting logistics for Liverpool – we are grateful that we have been offered accommodation.
- Tomorrow: Eloise will have the community nurse visit to do Covid tests etc.
- Monday: We will travel straight to Liverpool for Eloise to be admitted into Alder Hey.
- Tuesday: Surgery by Mr Conor Mallucci and the team at Alder Hey, to remove the tumour (ideally all of it!).
For those that pray:
- Pray for the logistics….it’s a lot to sort in a short period, whilst looking after Eloise who requires a lot of care
- Pray for the tumour to shrink away from the tricky areas. The chemo that Eloise has had can still have an affect over the coming days – so pray it helps make surgery easier, and indicates that the tumour still responds in some way to chemo.
We will send some more prayer points in due course – as we will need Eloise to be surrounded in prayer on Tuesday!