This afternoon the Neurosurgeon phoned us to inform us that the preliminary results from Eloise’s biopsy have identified her tumour as a completely different tumour to what they had originally thought.
The new tumour (an Embryonal Tumour) is an aggressive, high grade tumour not usually found in the location that Eloise has her tumour, but is likely to spread to other areas of the Central Nervous System (CNS). Further tests are needed to work out the exact sub-set of the tumour – but for now they are advising that Eloise has chemotherapy and not surgery (she is too young for radiotherapy).
We will meet with an Oncologist next week to discuss the full results and discuss chemo in more detail, with a view to starting chemo the week after.
This is clearly not the news we were wanting and is extremely distressing to hear.
How do we feel:
- Devastated. Its pretty much the worst thing you can imagine for your little darling girl – let alone for Anna, and us all.
To be honest – that’s pretty much it. We are desperately trying to put on a brave face for Anna and Eloise, but being honest, it really is awful….
For those that pray:
- For the tumour to be obliterated 😊
- For the tumour sub-set to be one that responds well to chemotherapy
- For strength to keep smiling and be joyful for the girls – and to enjoy the days, even if we are in lockdown as well!