Different, difficult and distressing biopsy results

This afternoon the Neurosurgeon phoned us to inform us that the preliminary results from Eloise’s biopsy have identified her tumour as a completely different tumour to what they had originally thought.

The new tumour (an Embryonal Tumour) is an aggressive, high grade tumour not usually found in the location that Eloise has her tumour, but is likely to spread to other areas of the Central Nervous System (CNS).  Further tests are needed to work out the exact sub-set of the tumour – but for now they are advising that Eloise has chemotherapy and not surgery (she is too young for radiotherapy).

We will meet with an Oncologist next week to discuss the full results and discuss chemo in more detail, with a view to starting chemo the week after.

This is clearly not the news we were wanting and is extremely distressing to hear.

How do we feel:

  • Devastated.  Its pretty much the worst thing you can imagine for your little darling girl – let alone for Anna, and us all.

To be honest – that’s pretty much it.  We are desperately trying to put on a brave face for Anna and Eloise, but being honest, it really is awful….

For those that pray:

  • For the tumour to be obliterated 😊
  • For the tumour sub-set to be one that responds well to chemotherapy
  • For strength to keep smiling and be joyful for the girls – and to enjoy the days, even if we are in lockdown as well!

28 thoughts on “Different, difficult and distressing biopsy results

  1. Dear Mel and Pete
    We are truly devastated to hear today’s news. I wish there was something we could say that would cheer you and make you feel there is light at the end of the tunnel.
    Please be assured of our prayers as well as other family members who have committed to pray for you all through this ongoing distressing time.
    This comes with all our love and ongoing commitment to prayer
    Miriam and John
    Xxxxxxx
    John Fowler
    H: 01425 616216 M: 07970 822338 E: John.mimf@gmail.com
    >

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  2. Devastating news darling people. We have many lovely intercessors here in Northumberland praying for Eloise and you all. I don’t know you Mel and Pete but know Ross who asked me to pray.

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  3. This is very distressing news indeed! My prayers remain for a complete healing!! Thank you so much for your updates that help guide prayer, they must be very difficult to write. Know that you are LOVED across the globe.

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  4. Can’t imagine how you must be feeling and processing this, your beautiful precious little girl, praying for some way thru, that God would make a way where it seems utterly impossible. Lifting you to the Father to supply all that you need for each day 💕

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  5. Oh my goodness. We simply cannot imagine your heartache right now with that news. Thank you for taking the time and energy to write and update us. Not easy. Please know that you are all covered in prayer and we stand with you battling in the heavenly realms.

    The Lord bless you and keep you.
    The Lord make His face to shine upon you and be gracious to you.
    The Lord lift up the light of His countenance upon you
    And give you peace.

    Much love,
    Carolina & Toby

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  6. Praying the points you have asked for ; standing in the name of Jesus . God bless you all. Penny + ( a friend of Charlie)

    Sent from my iPad Bless

    >

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  7. All of us in St Peter’s church prayer group, ashburnham Place, Battle are holding you all up in prayer, May the Lord bless you mightily at this time. Xxx

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  8. We are so sorry to hear this. We are praying for you all. Praying that the tumour will respond extremely well to treatment and be totally successful. Praying for strength and joyful times together even in the terrible worry.

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  9. Praying for you all at this devastating & heartbreaking news 💔 That you may find some peace in the storm, & that a miracle may come for your darling Eloise 🙏🏻♥️

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  10. I’m so very sorry to hear this devastating news! Cannot begin to imagine! Praying for strength to get you all through the coming days. ❤️🙏🏻

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  11. My goodness, I’m so sorry to hear that, I can’t imagine the pain and worry you’re going through but sending lots of love from afar and will keep praying! Know that God loves you all and he loves Eloise and he will be with you every step of the way. My parish has a daily prayer group on Zoom and they are all following your story and praying for Eloise every day!

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  12. Dear Mel and Pete, We are so, so incredibly sorry to read this news..our hearts are breaking for you going through this devastating situation with your precious girls. I know there really are no words, but you are in our hearts and thoughts, and we cry out to God to intervene. So much love, Sam and Melissa xx

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  13. Sadly, this is definitely not the news I was hoping to read but rest assured that I’m continuing to hold Eloise – and you all – in my prayers every day. As the apostle John said: “The light shines in the darkness, but the darkness has not overcome it.” (Ch 1 v 5)

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  14. Mel & Pete this is the news no-one wanted to hear. I can only imagine your pain and suffering. I continue to hold you all in prayer as you continue to battle for Eloise. xx

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  15. Mel and Pete, you are quite literally my every thought. I have cried so many times since reading the blog yesterday. I’m just heartbroken and devastated to hear this news. I can’t imagine how you are all coping and just think you are incredible….spending time with your girls and being strong for them takes a huge amount of emotional energy without coping with all the overwhelming emotions you are both feeling yourselves. I’m just praying for you all and thinking of you constantly. You are all loved and held in so, so many people’s thoughts. If only there was more we could do to help.

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  16. Not the news I’d hope to read at all, but we don’t look at circumstances, we look at our amazing, powerful kind God. Praying for Eloise daily, sending you so much love.
    xxx

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  17. Such distressing news, but we pray for our Mighty God to intervene in a miraculous way, for his glory. And praying on for you all to have supernatural strength to cope.

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  18. Hold on to hope, hold on to each other and hold on to God. We in Harbour Churches continue to pray for healing and wholeness and we are holding on to you through these difficult days.

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  19. God is still on the throne of justice. He is a God of mercy and compassion. He has got this even if the way it is happening is not the way we would imagine.His ways are not our ways and His thoughts are not our thoughts. Think how much you love Eloise and know that God loves her more. He created her for a purpose.and that has to be lived out. IT IS NOT OVER UNTIL IT IS OVER. Eloise is in the huge hands of GOD. We continue to pray in faith for her and you all. We love you so much darlings NANNA xx

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  20. Dear lovely family, so sorry to hear this latest set back but as Pauline said, God is still on His throne. We have two girls and can only imagine what you’re going through. Standing with you in faith for Eloise’s healing, protection over Anna’s little heart & mind and Grace & Mercy for what the next few weeks hold for you all.
    Holding you all up in prayer,
    Charlie xx

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  21. Dear lovely family, so sorry to hear this latest set back but as Pauline said, God is still on His throne. We have two girls and can only imagine what you’re going through. Standing with you in faith for Eloise’s healing, protection over Anna’s little heart & mind and Grace & Mercy for what the next few weeks hold for you all.
    Holding you all up in prayer,
    Charlie xx

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