Author Archives: Eloise Zoe Updates

After a long time without one – Eloise has an MRI tomorrow. Overall she’s doing really well – making progress physically and developmentally and really benefitting from all the daily and repeated interventions she receives at school and from professionals. We are so grateful for the school and a wider community that champion Eloise andContinue reading “MRI tomorrow”

As Eloise’s medical procedures have start to space out, our frequency of posting blogs has also reduced. Lots has happened since Eloise’s last MRI in October, so we thought we would share a short update of how Eloise is getting on. Eloise is doing well. She is doing wonderfully well. After a long season ofContinue reading “A season of joy”

Eloise’s scan has come back all clear – with no changes from the last scan!  There is no evidence of recurrence, no change to the lesion in her pons, and the hydrocephalus is well managed.  Hooray!  Thank you so much for praying. Eloise has had a stream of appointments this past week at different LondonContinue reading “All Good MRI”

Eloise is currently having her (now 6-monthly) MRI.  She has been a superstar as always, having no breakfast and today even gave herself the general anasaethic (i.e. holds the gas mask).  We are really grateful Eloise is well enough with no coughs, colds or temperature this week so she can go ahead with the scanContinue reading “It’s MRI day”

Today marked a significant milestone in Eloise’s life – she started school.  Like many children, Eloise marked the occasion with the obligatory photo by the front door in new school shoes and a (slightly) oversized uniform. Eloise was excited, proud, and was definitely ready to start – not showing any hesitation and eager to joinContinue reading “A remarkable milestone – starting school”

On Thursday, Eloise turned 5.  Another milestone – and another birthday we are very grateful for. Yesterday Eloise celebrated it by hosting a party with 20 of her friends.  Eloise was very specific in some of her wishes for her party so it included a paw patrol bouncy castle with a slide (very important apparently),Continue reading “An update as Eloise turns 5!”

Just a little update to say that we had a call with Eloise’s neurosurgeon to get her MRI results this week. Unfortunately, for various reasons Eloise’s case wasn’t discussed at the MDT and we don’t have a formal radiologist report. However the Neurosurgeon has reviewed the scans and indicatively said it looks all clear fromContinue reading “MRI Update”

Eloise has been doing (in her world) really well.  We intentionally include the caveat as when people ask us ‘How is Eloise?’ – it’s often hard to know what to say.  Apologies if you’ve asked us this and we’ve stumbled with our words and struggled with a response. All things considered, Eloise has been doingContinue reading “Eloise’s MRI this week”