The last few days have been a bit unpredictable – Eloise’s midline stopped working so bloods were taken ‘normally’ (i.e. via a needle in the arm) and she also pulled her NG tube out, which had to be replaced. So, we’ve had a few extra trips to hospital. As always, we’ve received excellent care and we managed to have the whole weekend without stepping into a hospital – yay!
Eloise has just gone down for her next intrathecal chemo, which is still being done via lumbar puncture for the time being.
For those that pray:
- Pray that she tolerates this chemo well. Other times she’s sometimes spiked a temperature in the evening after. Please pray she is ok tonight and we don’t have any additional hospital stays.
- Pray Eloise gets stronger. She’s still having tremors at times and is quite weak, comparatively to a few weeks ago and very much so in comparison to her peers! We are spending lots of time just pottering around the house and trying to be creative in ways to get her to stretch her legs/exercise as she’s finding parks/play areas too cold and just wants to be cuddled.
- Pray against long term side effects of her treatment. We’ve become very aware of how Eloise has ‘stalled’ developmentally this year and is weaker in many ways than she was at 18 months. She’s still struggling with tiredness and probable somnolence from Proton therapy, alongside the chemo and numerous other things she has currently going on! This can be pretty hard when society ingrains the importance of development in the ‘early years’. Please pray against these and the long-term side effects. Pray that much of this is temporary and one day soon, that she will thrive, smile more and be able to live life to the full.