After posting yesterday’s blog we have been told that Eloise will now have surgery on Friday morning (around 8.30) and not today (Thursday).
The procedure will also now involve a biopsy as well as an ETV – the whole procedure should take roughly an hour to an hour and half.
The reason for the biopsy is we have found out that Eloise’s tumour has aggressively grown (it has grown ~50% in size in two months) and we need to send off samples to review it pathologically to help determine the next steps.
This has come as a huge shock as the majority (80%) of tectal plate gliomas (the suspected type of tumour that Eloise has) are very slow growing. Confusingly, the MRI did not show some of the other signs (such as enhancement or diffusion) that the tumour is malignant. However, the large increase in the tumours size is cause for concern.
We can only take it one step at a time and will focus on making sure that the ETV surgery goes as smoothly as possible to reduce the hydrocephalus before discussing our options for the tumour.
For those that pray:
- Pray for healing – for the reduction and elimination of Eloise’s symptoms (seizures and trembling), tumour and pressure in the brain
- Please pray for peace, wisdom and protection over all our family – it has been an immensely tough and shocking day for all of us and we need to think clearly and calmly as we discuss and consent to pretty major brain surgery
- Pray that Eloise does not get too distressed in hospital with the continuous stream of tests, change in routine and broken sleep to be observed through the night
- Pray for energy – we are both feeling pretty drained but equally know this is just the start of a rough week and even longer treatment journey for Eloise
- Pray for Anna – that she won’t feel abandoned, lonely or less valued as a result of all that is going on